Kevin's Dead Cat

After surgery sliced off an entire tumor and 1/3 of my tongue, plus six weeks of radiation therapy, I've been re-learning how to eat, drink, and talk with my newly re-constructed tongue and coping with side effects. But the cancer came back and I don't know what's going to happen next.

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Location: Los Angeles, California, United States

I don't want life to imitate art. I want life to be art.

Tuesday, March 22, 2005

More Resources

I checked out the Head & Neck msg board on, and it was more helpful. They're closer to my age, but mostly younger! Now I know that the ringing in my ears that just began two weeks ago is common after radiation therapy. I was afraid the cancer had spread to my ears!

I found a woman in Boston who went through what I did, plus a procedure called brachytherapy. They "implant mini-glass jars in the underside of the jaw and slide radiation seeds into them over the course of a few days, directly into the tongue." I remember the radiation specialists mentioning this procedure before I did the external radiation method. I remember that it freaked me out. It still does. The upside is I wouldn't lose any hair, but I would have to be hospitalized for a few days.

Another guy who went through 8 weeks of radiation and Cisplatin chemotherapy lost some feeling in the tips of his fingers temporarily. That happens to me on and off, too. Along with a tingling around my surgery arm, and neck twinges from surgery.

So I am feeling better now that I'm discovering better online resources. One of the best postings was to a McSweeney's list:

"Signs Your Doctor May Be Coming On To You" by Wendy Molyneux


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